We are always happy to share stories from our patients. Hopefully, they will help you gain more insight regarding how life might be with a Barnett Continent Intestinal Reservoir (BCIR). In addition, once you have surgery, we are committed to a smooth transition back home - you may find our "Patient Tips" helpful.
Our Patient Testimonials include stories and photos from actual patients. However, since we cannot assure you that your outcome will match the portrayals of these patients - we suggest you visit the Clinical Studies page where you will see data that reflects our outcomes that have been published in medical journals. The stories of our patients are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians.
If you'd like to receive more information or a list of past patients with a BCIR, please email Susan Kay, R.N or call her at 1-800-336-0789. Don't forget to ask her to send you a CD about the BCIR procedure.
Some of our patients have shared their success stories with us. Hopefully, they will help you gain more insight regarding how life might be with a Barnett Continent Intestinal Reservoir.
I love life! I like swimming in the ocean and skiing in the mountains. I'm a workaholic and can't imagine my life any other way!
I was diagnosed with Ulcerative Colitis at age 46. It's such a strange disease, because it slowly changes your life. You start avoiding activities where you're unsure of the availability of bathrooms. Or you find yourself too fatigued from the around the clock bathroom trips to make it to the 10 o'clock news. I found myself taking medications that changed me into an angry guy.
In June of 2007 I had BCIR surgery. My GI doctor had said it's time to be proactive with my UC. It was no longer a question of "Would I get cancer?" but "When would I get cancer?" His recommendation was a j-pouch. After researching this procedure, I rejected it because I read a lot of complaints with incontinence, sleep deprivation, self-esteem, and sexuality. Further research lead me to the Quality Life Association Website where I learned about the Continent Intestinal Reservoir. I remember reading about a guy with a busy life who didn't want to give up his quality of life to this disease. I wasn't ready to give up my life as I had known it.
It was not an easy decision. My GI doc, who I think the world of, did not have good things to say about this surgery. But I made a list of all the pros and cons of both j-pouch and BCIR, and presented my case to him. He has supported me ever since on this journey.
It's been a year now since my BCIR surgery and I can say without hesitation, I love my life! I have been skiing in Vail, zip lined in the rainforest of St. Lucia, parasailing in Hawaii, and work 50+ hours a week!